We applied for SSI for Bede last year. I can’t remember if I blogged about it at the time or not. For those who don’t know what that is, SSI stands for Supplemental Security Income, and it’s much like Social Security Disability, except it’s for people who have never paid Social Security taxes and is funded from the general federal budget. So, in a general sense you can think of it as being like SSDI, pretty much.
Anyway, we found out today that he was approved for it. It maxes out at around $640 a month, and we don’t yet know how much he’ll receive. We plan to immediately begin using it for at least monthly occupational therapy (he’s never had any because we couldn’t afford it) and more frequent visits to his psychologist. All of that will depend on how much his payment is, which will be dependent on our income, which we have to update for the SSA. Clear as mud?
I have some interesting feelings about the whole thing. I’m VERY happy that this money will be available to Bede. I know he will really benefit from OT and seeing his psychologist more often. But at the same time it is a heavier yoke to bear for me as I am reminded that my son is considered disabled. Even the gummint thinks so. Myself, I forget that he is. It sounds silly that I could live with this little naked boy who cannot really speak and forget somehow that he is, but I do forget it.
I don’t think of him as disabled. Impaired, handicapped… sure. But not disabled. I just don’t think that’s what he is.
Ah me. Ran out of steam, I think. In the meantime the ABFH has a post on a similar topic, here. She’s more eloquent than I. She didn’t have a 22mo clinging to her leg or trying to reboot the computer, no doubt.
Now that there’s a handicap.