Recently in autism Category

Bede loves the PBS logo. He draws endless comics of the PBS P-head on adventures with his fellow television and film logo pals, Viacom and Screen Gems. The DiC logo is usually the villain in the stories. I don’t know why. I myself find the Viacom V of Doom very creepy.

I have some of these to scan in. His volume is incredible. He produces about fifty drawings a day and it’s difficult for me to select the ones to show you. But that’s not why I’m blogging.

Last week, I ordered this for him from the PBS shop.

It came today.

I opened the box and peeked in. It was what I thought it was. I took it out of the packing materials. Bede was sitting next to me on the sofa, mildly interested in the boxes in my lap, but also watching Alice in Wonderland, backwards, in French.

“Hey, Bede. Look what I have!” I said.

He glanced my way, then did a double-take. His eyes widened and an enormous grin split his face. “Ho ho ho!” he chortled. He stood up and hopped in place.

“It’s for you. I got it for you, Bede.” I held it out towards him.

He moaned and ran across the room, hopped, then ran back. He was still smiling hugely. He whispered, so softly I could just hear him, “It’s PBS. On your shirt.”

“Do you want to put it on, Bede?” I asked.

“YEAH!”

So he did. I guided his head and arms to the correct spots and he looked down at his chest blissfully. He was near exploding from joy at this point. He ran to a window to see his reflection, then ran back to me.

“Do you like the shirt, Bede?” I asked, redundantly.

He flung himself into my lap and hugged me, smiling that incredible smile.

I’ll take that as a yes. I love you too, little boy.

Just a quick note to say…

Bede brushed his own teeth tonight, the whole shebang!

We’ll slowly work toward putting the paste on by himself, but for now I say skill attained: CHECK! Woohoo Bede!

My previous posts on this:

Introducing the process

An update

That’s what Faith just misheard me say. The poor child must be addle-pated.

I’ve been reading The Shallows: What the internet is doing to our brains. It’s not good. I mean, the book is good - quick read, informative, engaging - but the Internet is not good. Reading it has cemented my feelings that we are changing from mostly-unschoolers to mostly-not. I knew we were moving that way but I was filled with self-doubt because I didn’t want to take away any choices from the children as far as how they wished to spend time. Now that I’m convinced that the Internet is rewiring their brains to suit it I’m convinced that I need to give them a better framework. I’d say we’ve moved fully into Charlotte Mason territory where we had heretofore been only dipping our toes, to mix a metaphor.

Just now, Bede said “Look. Mom. Come and See! Tell it to me on your computer!” and dragged me to his computer, where I was to read what he had typed. (it was a SpongeBob script) and then say “Oooh, cool.” The language was Dalek stilted but, some appropriate pronouns! Shared attention! He’s so awesome.

i have a post planned with the full list of medieval books we’re going to use. But now Gloria is crying! Dearie me.

hi!
will you play with me?
you’re weck-ome.
ladies and gentlemen, it’s Mom! (applauds)

are all unprompted and unsolicited utterances of my oldest son, today! I think there are some changes going on in his language centers.

The other day he said “I love you too” when I said “I love you kids!” And last night we had a conversation, which is unheard (ha, ha) of.

I said “Hey, Bede. Are you tired?”

He said “No.”

I said “I’m tired. Are you sure you’re not tired?”

He said “Yeah. I am tired.” and yawned.

I said “Gloria and I are going to sit on the sofa. Do you want to sit on the sofa with us?”

He said “Yeah. I’m tired. I want to sit on the sofa.” and made no move towards the living room.

I said “Well, let’s go then, buddy,” and he was up and off to the sofa.

That’s more give and take conversation than I’ve ever had with him, I think. Mind you, he stiil sounds like a Dalek, with that charming flat autistic prosody and inflection. It’s very appealing.

Now he’s reading Calvin and Hobbes. What a cutie.

I made pizza for dinner. I do that about twice a month, as scratch pizza is an undertaking, you see, and not one to be done lightly. Tonight I had help from this fellow here:

who looks much less ghostly in real light.

He came in as I was plopping the crust on the pan, and said “Mama is making bread. Hmmhn.”

I said, “It’s pizza.”

He said “PIZZA!” and was so overcome with excitement that he had to skip off and touch the laundry room wall, then come back.

I said, “Do you want to help me?”

He said, “Hmmhn! Help me.”

I said, “You need oil on your hands. Here is oil.” and spread the olive oil on his hands so he could help press the dough. He did so, pressing perhaps a bit too firmly, but trying so hard to do it just right. I let him do a little, then directed him to the sink while I finished. He washed his hands and dried them, with prompting, and I applied the sauce. He was watching, and deeply wanted to write in the sauce, but restrained himself. Then we did the cheese, which he did perfectly.

My favorite was the application of the pepperonis. He skittered off mid-cheese and I thought he was overwhelmed and done with the whole thing. I finished the cheese and was putting the pepperonis on when a little hand snaked in beside me and placed a slice next to mine. He had gotten a stack of them and proceeded to put them on, precisely, until there was no room for more.

We finished then, and I got on my knees to hug him. I said, “You made the pizza, Bede! You are a wonderful pizza maker!” and he smiled.

I took his picture and then we settled down to watch it bake. Now we’re going to eat it, and it will be the best pizza ever.

And that, my friends, that’s amore.

No, no, this isn’t going to be my long-awaited picture post. Instead, it’s about picture books! On Twitter, Melissa Wiley mentioned the favorites at her house right now, and I started to reply with ours but quickly hit the 140 limit.

Gloria’s favorite is unquestionably “the big book!”, the HarperCollins Treasury of Picture Book Classics. According to Amazon, I purchased it a year and a half ago and I don’t think a day has gone by since that it hasn’t been read from. It is a great book, and a steal compared to purchasing the titles individually. Unlike many compendiums of kids’ books these are not abridged in word or illustration, nor are the illustrations reduced in size. The paper is heavy and holds up to repeated (and repeated!) readings, although I have had to tape the binding and use a bit of glue to hold the covers to the front papers. It consists of:

Goodnight Moon
Caps for Sale
Harold and the Purple Crayon
Crictor
A Baby Sister for Frances
Leo the Late Bloomer
William’s Doll
If You Give A Mouse a Cookie
George Shrinks
Baby Says
From Head to Toe
Pete’s a Pizza

(The only one I could honestly do without is the very outdated William’s Doll. It introduced the idea that it was weird for boys to have dolls to my children which is what the story was trying to prevent. Heavy-handed writing is heavy-handed.)

Trixie is VERY into the whole If You Give A… series. Her favorite is If You Give a Pig a Party, but really any of them will do. Have you ever noticed the kids in those books look dismayed pretty quickly as they deal with the capricous whims of their charges? Heh heh. Welcome to my world, buddy.

Gilbert likes the Pigeon series, especially Don’t Let the Pigeon Drive the Bus! Gilbert has the melodramatic nature of many five-year olds, and he simultaneously feels for the pigeon, who just wants to drive the bus, fer cryin’ out loud, and yet loves beyond reason the power of telling him NO. Great, great book.

Bede is all about Seuss and Eastman right now. His decoding skills are mad but his ability to follow a plot is significantly delayed, so he really likes books like The Cat in the Hat and similar. A favorite of his is The BIG Blue Book of Beginner Books, which has six stories in it:

Put Me in the Zoo
A Fly Went By
Are You My Mother?
Go, Dog. Go!
The Best Nest
It’s Not Easy Being a Bunny

Again, a steal to get them all for one price. Bede likes to read them all, out loud, to me and Gloria. My favorite is Go, Dog. Go! but I am also fond of A Fly Went By.

So, yeah, busted that 140 character limit pretty hard, huh?

HarperCollins Treasury of Picture Book Classics

If You Give a Pig a Party

Don’t Let the Pigeon Drive the Bus!

Big Blue Book of Beginner Books

Bede has requested toothbrushing on his own at least twice (“You want some brush your teeth? Okaysure, I getchoo some brush your teeth.”) and tonight allowed his entire mouth to be very thoroughly brushed, making appropriate “eee” and “aaah” sounds. Milestone! He’s not shown any interest in doing the brushing himself but I don’t care about that yet.

I feel like dental hygiene is especially important with Bede as he might be unable to articulate tooth problems before they become emergencies. Now that we’ve progressed to home brushing my next goal is a dental visit. It won’t be for months, and the first visit should be very short and maybe we can get him to let them count his teeth, no more. When he gets older I will definitely be getting sealants for him, even if he has to be sedated. I want everything to be very positive, and no forcing or coercing, you know? Better to have Bede After Dentist.

This doesn’t even touch on restricted interests, which goes hand in hand with repetitive behavior. That one gets its own post.

Bede has never been a guy who’s much into toys. We recently rediscovered his favorite (such as it was) toy as an infant: it’s a device you can twist and shake that makes different dings and rattles depending on which part is manipulated. But Bede never did that; he just set it on the floor and spun it like a top. Over and over and over.

He went through a long period of playing with blocks, the classic kind that have alphabet letters printed on them. (That’s how we learned he knew what they all were, and their sounds.) He would line them up on the edge of the table and scream when they fell, then try again. Over and over and over.

When he got a little older, he started to watch television. He was tyrannical with the DVD player, and made it impossible to watch anything but what he wanted to watch, which was invariably the same program. Disney’s Very Merry Christmas Songs and Mickey’s Twice Upon a Christmas were the only thing on our TV for a year. Then the Cars root menu. Just the root menu! Over and over and over.

I have a theory about this sort of repetitive behavior (which has diminished greatly as Bede has gotten older.) I think he liked the utter sameness of one thing compared with the highly variable world around it. Was it the same movie if it was on when Faith was in the room? Yeah. How bout when he was eating pizza? Uh-huh. But wait, what if he was under a blanket on the sofa? If there were toys on the shelf? Yep. And so on. Over and over and over.

Up next: restricted interests - hyperlexia supreme!

For Autism Awareness Month, I’ll be posting about life with autism. Tonight it’s about toothbrushing, which can be very difficult to accomplish with autistic children.

Bede has not had his teeth brushed for ten months. Yes, ten months. One night, I stupidly used an electric toothbrush and powerful mint toothpaste and he’s been against it ever since. I offered about once every two weeks to try to get him to agree to it and it has been frantic, panicked NO. However, I thought that maybe the move to the new house would help since everything here is “new”. I bought a new (non-electric!) toothbrush and some much milder toddler toothpaste and here’s how it went.

Me: Hey, I got a new toothbrush for you.

Bede: No, not a toothbrush.

Me: Yes, a toothbrush.

Bede: NO. NOT. A. TOOTHBRUSH.

Me: -gets toothbrush, adds microscopic amount of Tom’s Silly Strawberry-

Bede: That’s Mama’s toothbrush.

Me: It’s Bede’s toothbrush.

Bede: NO. MAMA’S. TOOTHBRUSH. -pushes my hand to my mouth-

(Notice he’s not leaving, though, which is why I pressed on)

Me: Okay. My turn, then, your turn. -skims own teeth with brush- Say, “Eeeeee”

Bede: Eeee - NO.

Me: It’s okay. “Eeeeee”

Bede: Eeeee… -allows brush to touch his teeth and go back and forth for less than three seconds-

Me: Hey, Bede! Great toothbrushing! Way to GO, buddy!

Bede: (triumphantly) Good job! Toothbrushing! That’s Bede’s toothbrush!

-fin-

It was SO HARD not to push my luck, and try to get him to open his mouth. But I know I can get there, and if I force the issue now, he might never let me near him with a toothbrush again. Over the next few weeks I’ll do a little more each time, brushing twice or three times a week. I’ll be simultaneously pushing him to do it himself. My goal is in six months to have a seven year old boy who can simply brush his teeth when told to do so.

Last November, I committed to baking all our bread and cookies. Since then, we have saved at least 25% of our former food budget each month! Go, me!

We’re in the other house now. I’ll get pictures sometime.

I’ve downloaded a few books to this netbook, with Kindle for PC. I like it very much with one problem… can’t lend the book! Going to be paper for me from now on. Didn’t Amazon have some deal where you could buy the digital rights for a few bucks extra after buying a paper copy? I might do that sometimes if I Just Couldn’t Wait.

Going to go check on dinner now. Venison, carrots, potatoes and fresh whole wheat bread. NOM.